Prayer request

[TPA]

Hi all,
So my fiancé has had breathing issues for the past 3 months, ever since she fell down the front steps of a relative's house and landed on her side. Unfortunately all of us were at the top of the steps and not able to break the fall. Over this time, we had been to multiple doctors with no one wanting actually do anything. She's been feeling miserable but has been a trouper.

We went to urgent care last week, and they misdiagnosed it and still didn't take charge of things. I'm no pulmonologist, but I knew darn well that wasn't a pneumonia I was seeing on the x-ray. I said "enough" this week and took her into the ER. They did take ownership of the problem, and pulled >1 liter of fluid out of her chest cavity. Unfortunately, there were bigger problems... like failing kidneys, which blindsided us. We knew there were issues, but we had made changes and her #s were improving.

Seeing the current #s, we had no choice but to start dialysis. This is a major life change for us, one we weren't expecting. She'd been losing weight, #s were looking good. Her GP even was planning on taking her diabetes dx off her charts entirely because her glucose #s were so good, totally without meds.

We are both taking this very hard. We love to travel, very spontaneously.

The doctors are trying to cheer us up by saying that dialysis may be only temporary. We're praying it is. Even at that, it's still a major change in lifestyle for us.

Please pray for her, that this is truly just a temporary bump in the road. Thank you.

 

[AZPops]

... She is in my nightly prayers! Asking for a speedy recovery! Take care my friend!

 

[AMD64Brunette]

Praying for you. So sorry to hear about her health issues.

 

[aznsx]

Very sorry to hear, and indeed thoughts and prayers for you both here Sir.

 

[russprechtl]

Hi all,
So my fiancé has had breathing issues for the past 3 months, ever since she fell down the front steps of a relative's house and landed on her side. Unfortunately all of us were at the top of the steps and not able to break the fall. Over this time, we had been to multiple doctors with no one wanting actually do anything. She's been feeling miserable but has been a trouper.

We went to urgent care last week, and they misdiagnosed it and still didn't take charge of things. I'm no pulmonologist, but I knew darn well that wasn't a pneumonia I was seeing on the x-ray. I said "enough" this week and took her into the ER. They did take ownership of the problem, and pulled >1 liter of fluid out of her chest cavity. Unfortunately, there were bigger problems... like failing kidneys, which blindsided us. We knew there were issues, but we had made changes and her #s were improving.

Seeing the current #s, we had no choice but to start dialysis. This is a major life change for us, one we weren't expecting. She'd been losing weight, #s were looking good. Her GP even was planning on taking her diabetes dx off her charts entirely because her glucose #s were so good, totally without meds.

We are both taking this very hard. We love to travel, very spontaneously.

The doctors are trying to cheer us up by saying that dialysis may be only temporary. We're praying it is. Even at that, it's still a major change in lifestyle for us.

Please pray for her, that this is truly just a temporary bump in the road. Thank you.

You've got it! We will add her to our chain as well. Let us know how her healing progresses, and both of you take care.

 

[bluflaam777]

Praying! Comfort, healing, rest. "Fear is not the end of this"
~In His Love

 

[RWT1405]

In my prayers

 

[Beamhead]

Prayers sent

 

[IMA SOL MAN]

Done.

 

[JJZ109]

Added another just now!

 

[TPA]

Thank you all. I truly mean that.
She was discharged 10pm Saturday. She wasn't feeling great, but improved from admission. Breathing a bit better, and the last time she vomited was 12 hours prior to discharge. She hasn't since then either.

We're now navigating this dialysis journey...and we'll see where it leads. Still asking for prayer that this is temporary.

I also have to say that the way dialysis is performed is DUMB and archaic. I'm trying to get ahold of some industry people to see if we can come up with a better way. I already have a few ideas which would have helped us and prevented some of the bad reactions she's had.

 

[AMD64Brunette]

Glad to hear she's doing better.

 

[Monocrom]

Literally just found this topic. She will be in my prayers. I see she was discharged, but still not 100%. Hope that changes very soon.

 

[Bill S.]

Just stopped in and saw this. I will be praying for her to be completely healed. God bless you.

 

[TPA]

Hi all,
We need your prayers again. 6 months in, and she's still no better. Worse, she's gotten a very strong taste of just how incompetent, greedy, and uncaring the US hellcare system is.

The nephrologist assigned to her at the hospital was a total and complete jerk, a foreigner with a god complex. She refused to listen, refused answer any questions, refused to explain anything. When we were trying to get her to understand that this was an acute injury on top of a chronic condition, the Dr flat out said it was impossible, despite ALL of the other doctors' who saw her saying it was. She was so petty that she told us "If you're going to try to save her kidneys, I'm not going to put her on a transplant list until you come to your senses" and stormed out of the room.

Everything this doctor did was absolutely vile. She loaded her up with meds, which made her very ill, causing her to pass out multiple times in public. The dialysis sessions were excruciating at times, with her screaming and crying in pain. At one point her legs and arms were in full spasm (sticking straight up) in the dialysis chair, she's crying in pain, telling the nurse she wants to stop immediately. The nurse laughed at her and said she'd be back in 30 minutes and left her in pain. It took 3 people to carry her out of the chair and get her back in the car.

Making matters worse, you can't just get a new nephrologist when you're on dialysis! We tried for 6 weeks to get a new nephrologist. NO ONE would take her because she was already being seen by a doctor in the area. We contacted multiple physicians' offices (up to 36 nephrologists) and no one would accept someone from in the area out of "Professional Courtesy."

We ended up having to go to the State regulatory agency to force a transfer. Even then, it took two calls to the State because they #1) Didn't want to give up the dialysis money, wherein they bill her insurance $8k per each session, 3x a week, #2) didn't want to let her go to a different doctor's group. Did I mention the nephrologist owned the dialysis center?

Finally with a new nephrologist and new dialysis center (which the new nephro doesn't own). While he's somewhat better than the last one, he's still not listening. At the very least, the new Dr has changed her session protocol to something less aggressive, the new dialysis center has MUCH more caring and attentive staff, and her sessions are becoming more comfortable.

BUT... she still can't breathe. We've been to 4 pulmonologists in 6 months. The last one was so rude that he made her cry. THAT rude. Again, foreigner (same nationality as the nephrologist), God complex. Refused to answer any questions or explain anything. What floors me is that NONE of the pulmonologists have been willing to run tests! They look at the images, see the kidney dx, and their brains shut off. They claim she can't breathe because of fluid in her pleural space, however draining it doesn't help. In fact, each time they've drained it she's lost additional capacity.

Did you know that the kidneys use 25% of the body's entire oxygen supply? None of the doctors we've seen so far have. ::. They don't understand why I'm so passionate about her breathing issues, when her max breath is barely 1/4 what normal should be. Gee, kidneys need O2! If she can't breathe, neither can they!

Then again, the new nephro put her in hospital last month for 5 days which was a total waste of time and money. Staff didn't even know you needed a stethoscope to take a manual blood pressure! and at one point the meds they gave her caused her to lose consciousness, and despite pushing the nurse call button repeatedly and being told someone was coming repeatedly...no one ever came. After an hour I ripped the charge nurse a new one and had a combined meeting with risk management and the head of nursing a week later.

Our primary doctor is practically besides himself with this. So, he set us up with Mayo Clinic. We're going Thursday.

Please pray that we make it to Mayo, as her health (breathing) isn't great. and please pray that we get actual doctors with functional brains, preferably God's wisdom, at Mayo...and that at least this saga can be behind us. She's sick and tired of being sick and tired, and sometimes doesn't want to live.

and I feel guilty for asking for prayers for myself on this, but I need rest. I'm spent. My life got put on hold in 2022 and I've been caring for others (besides my fiancé) non-stop. and now I need rest for myself.

Thank all of you. You're a wonderful group. While we've never met, your presence and prayers are still very reassuring.

 

[AMD64Brunette]

My prayers are with you and your fiancé.

 

[PhotonWrangler]

Hi all,
So my fiancé has had breathing issues for the past 3 months, ever since she fell down the front steps of a relative's house and landed on her side. Unfortunately all of us were at the top of the steps and not able to break the fall. Over this time, we had been to multiple doctors with no one wanting actually do anything. She's been feeling miserable but has been a trouper.

We went to urgent care last week, and they misdiagnosed it and still didn't take charge of things. I'm no pulmonologist, but I knew darn well that wasn't a pneumonia I was seeing on the x-ray. I said "enough" this week and took her into the ER. They did take ownership of the problem, and pulled >1 liter of fluid out of her chest cavity. Unfortunately, there were bigger problems... like failing kidneys, which blindsided us. We knew there were issues, but we had made changes and her #s were improving.

Seeing the current #s, we had no choice but to start dialysis. This is a major life change for us, one we weren't expecting. She'd been losing weight, #s were looking good. Her GP even was planning on taking her diabetes dx off her charts entirely because her glucose #s were so good, totally without meds.

We are both taking this very hard. We love to travel, very spontaneously.

The doctors are trying to cheer us up by saying that dialysis may be only temporary. We're praying it is. Even at that, it's still a major change in lifestyle for us.

Please pray for her, that this is truly just a temporary bump in the road. Thank you.

TPA, I am sorry to hear this. I am hoping that the need for dialysis will only be temporary and that her kidneys will recover. Fingers crossed for her.

pw

 

[SCEMan]

How sad. Hoping for a quick turnaround

 

[jtr1962]

I hope your fiance will finally get the medical care she deserves. Your experience is an indictment of our health care system. I went through a lot of similar experiences with uncaring medical "professionals" with my late mother. For starters they never listen to what you are telling them about the patient. It's like they already made up their minds on their diagnosis from looking at charts and tests.

I'm sending you and her all my wishes for the best.

 

[aznsx]

I hardly know what to say, except that you are both in my prayers, and I am with you in spirit TPA.